{"id":1124,"date":"2018-02-20T12:37:24","date_gmt":"2018-02-20T11:37:24","guid":{"rendered":"http:\/\/nathanpaulin.com\/?p=1124"},"modified":"2018-02-20T12:39:06","modified_gmt":"2018-02-20T11:39:06","slug":"parrain-de-lassociation-eclas","status":"publish","type":"post","link":"https:\/\/nathanpaulin.com\/fr\/2018\/02\/parrain-de-lassociation-eclas\/","title":{"rendered":"Parrain de l&rsquo;association ECLAS"},"content":{"rendered":"<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-1125 size-full\" src=\"http:\/\/nathanpaulin.com\/wp-content\/uploads\/2018\/02\/header-e1519124696199.png\" alt=\"\" width=\"541\" height=\"184\" srcset=\"https:\/\/nathanpaulin.com\/wp-content\/uploads\/2018\/02\/header-e1519124696199.png 541w, https:\/\/nathanpaulin.com\/wp-content\/uploads\/2018\/02\/header-e1519124696199-300x102.png 300w\" sizes=\"auto, (max-width: 541px) 100vw, 541px\" \/><br \/>\nJe suis heureux d&rsquo;\u00eatre le nouveau parrain de l&rsquo;association ECLAS ! Apr\u00e8s avoir r\u00e9alis\u00e9 la travers\u00e9e entre la Tour Eiffel et le Trocad\u00e9ro en faveur du T\u00e9l\u00e9thon le 09 d\u00e9cembre 2017, j&rsquo;ai \u00e9t\u00e9 contact\u00e9 par les membres tr\u00e8s dynamiques de l&rsquo;association. C&rsquo;est avec plaisir que j&rsquo;ai accept\u00e9 de parrainer ECLAS afin de mieux faire connaitre cette maladie.<\/p>\n<p>Les membres d&rsquo;ECLAS cherchent \u00e0 soutenir ces familles, leur transmettre un peu de\u00a0leur\u00a0<strong>\u00e9nergie et de pr\u00e9cieux conseils<\/strong>\u00a0pour les aider \u00e0 accompagner leur petite fille ou leur petit gar\u00e7on.\u00a0L&rsquo;association\u00a0<strong>mise sur le collectif, l&rsquo;entraide et le partage d&rsquo;exp\u00e9riences<\/strong>, revendiquant l&rsquo;importance d&rsquo;avancer\u00a0<strong>E<\/strong><strong>N<\/strong><strong>S<\/strong><strong>E<\/strong><strong>M<\/strong><strong>B<\/strong><strong>L<\/strong><strong>E.<\/strong><\/p>\n<p style=\"font-weight: 400;\"><strong style=\"font-weight: 700 !important;\">De nombreux objectifs et missions<\/strong><\/p>\n<ul style=\"font-weight: 400;\">\n<li><strong style=\"font-weight: 700 !important;\">Faire connaitre<\/strong>\u00a0l&rsquo;Amyotrophie Spinale de type 1 (maladie de Werdnig Hoffmann),<\/li>\n<li>Faire\u00a0<strong style=\"font-weight: 700 !important;\">changer le regard<\/strong>\u00a0sur cette maladie,<\/li>\n<li>Mettre en place un\u00a0<strong style=\"font-weight: 700 !important;\">partage d&rsquo;exp\u00e9riences<\/strong>\u00a0au b\u00e9n\u00e9fice des familles et professionnels de sant\u00e9,<\/li>\n<li>Permettre une\u00a0<strong style=\"font-weight: 700 !important;\">prise en charge m\u00e9dicale pr\u00e9coce<\/strong>, globale et de qualit\u00e9 pour chaque enfant,<\/li>\n<li><strong style=\"font-weight: 700 !important;\">Accompagner et soutenir<\/strong>\u00a0les familles,<\/li>\n<li>Encourager des initiatives de\u00a0<strong style=\"font-weight: 700 !important;\">recherche<\/strong>\u00a0sur cette maladie,<\/li>\n<li><strong style=\"font-weight: 700 !important;\">D\u00e9velopper les contacts<\/strong>\u00a0avec les associations nationales comme internationales.<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<p>La maladie<br \/>\n<strong>L&rsquo;amyotrophie spinale de type 1<\/strong>\u00a0(ASI1 ou SMA1) appel\u00e9e \u00e9galement maladie de Werdnig Hoffmann est une\u00a0<strong>maladie h\u00e9r\u00e9ditaire, neuromusculaire et d\u00e9g\u00e9n\u00e9rative qui affecte les nourrissons<\/strong>.<\/p>\n<p>&nbsp;<\/p>\n<p>Vous trouverez toutes les informations sur le site web de l&rsquo;association :\u00a0<a href=\"https:\/\/www.eclas.fr\/\" target=\"_blank\" rel=\"noopener\"><strong>www.eclas.fr<\/strong><\/a><\/p>\n<p>&nbsp;<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-1127 size-full\" src=\"http:\/\/nathanpaulin.com\/wp-content\/uploads\/2018\/02\/Parrain-eclas.jpg\" alt=\"\" width=\"903\" height=\"909\" srcset=\"https:\/\/nathanpaulin.com\/wp-content\/uploads\/2018\/02\/Parrain-eclas.jpg 903w, https:\/\/nathanpaulin.com\/wp-content\/uploads\/2018\/02\/Parrain-eclas-150x150.jpg 150w, https:\/\/nathanpaulin.com\/wp-content\/uploads\/2018\/02\/Parrain-eclas-298x300.jpg 298w, https:\/\/nathanpaulin.com\/wp-content\/uploads\/2018\/02\/Parrain-eclas-768x773.jpg 768w, https:\/\/nathanpaulin.com\/wp-content\/uploads\/2018\/02\/Parrain-eclas-100x100.jpg 100w\" sizes=\"auto, (max-width: 903px) 100vw, 903px\" \/><\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p class=\"excerpt\">Je suis heureux d&rsquo;\u00eatre le nouveau parrain de l&rsquo;association ECLAS ! Apr\u00e8s avoir r\u00e9alis\u00e9 la travers\u00e9e entre la Tour Eiffel et le Trocad\u00e9ro en faveur du T\u00e9l\u00e9thon le 09 d\u00e9cembre 2017, j&rsquo;ai \u00e9t\u00e9 contact\u00e9 par les membres tr\u00e8s dynamiques de l&rsquo;association. C&rsquo;est avec plaisir que j&rsquo;ai accept\u00e9 de parrainer ECLAS afin de mieux faire connaitre cette maladie. Les membres d&rsquo;ECLAS&hellip; <a href=\"https:\/\/nathanpaulin.com\/fr\/2018\/02\/parrain-de-lassociation-eclas\/\">Read more &rarr;<\/a><\/p>\n","protected":false},"author":2,"featured_media":1126,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[3,2],"tags":[],"class_list":["post-1124","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-media","category-recits","xfolkentry"],"_links":{"self":[{"href":"https:\/\/nathanpaulin.com\/fr\/wp-json\/wp\/v2\/posts\/1124","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/nathanpaulin.com\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/nathanpaulin.com\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/nathanpaulin.com\/fr\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/nathanpaulin.com\/fr\/wp-json\/wp\/v2\/comments?post=1124"}],"version-history":[{"count":2,"href":"https:\/\/nathanpaulin.com\/fr\/wp-json\/wp\/v2\/posts\/1124\/revisions"}],"predecessor-version":[{"id":1129,"href":"https:\/\/nathanpaulin.com\/fr\/wp-json\/wp\/v2\/posts\/1124\/revisions\/1129"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/nathanpaulin.com\/fr\/wp-json\/wp\/v2\/media\/1126"}],"wp:attachment":[{"href":"https:\/\/nathanpaulin.com\/fr\/wp-json\/wp\/v2\/media?parent=1124"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/nathanpaulin.com\/fr\/wp-json\/wp\/v2\/categories?post=1124"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/nathanpaulin.com\/fr\/wp-json\/wp\/v2\/tags?post=1124"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}